selected publications
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academic article
- Validation of a Core Patient-Reported Outcome Measure for Fatigue in Patients Receiving Hemodialysis: The SONG-HD Fatigue Instrument.. Clinical journal of the American Society of Nephrology : CJASN. 15:1614-1621. 2020
- Identifying dimensions of fatigue in haemodialysis important to patients, caregivers and health professionals: An international survey.. Nephrology (Carlton, Vic.). 25:239-247. 2020
- Patient Perspectives on the Meaning and Impact of Fatigue in Hemodialysis: A Systematic Review and Thematic Analysis of Qualitative Studies.. American journal of kidney diseases : the official journal of the National Kidney Foundation. 74:179-192. 2019
- Advance care planning with patients on hemodialysis: an implementation study.. BMC palliative care. 18:-. 2019
- Establishing a Core Outcome Measure for Fatigue in Patients on Hemodialysis: A Standardized Outcomes in Nephrology-Hemodialysis (SONG-HD) Consensus Workshop Report.. American journal of kidney diseases : the official journal of the National Kidney Foundation. 72:104-112. 2018
- Patient-Reported Outcome Measures for Fatigue in Patients on Hemodialysis: A Systematic Review.. American journal of kidney diseases : the official journal of the National Kidney Foundation. 71:327-343. 2018
- Patient and Other Stakeholder Engagement in Patient-Centered Outcomes Research Institute Funded Studies of Patients with Kidney Diseases.. Clinical journal of the American Society of Nephrology : CJASN. 11:1703-1712. 2016
- Advance care planning: a qualitative study of dialysis patients and families.. Clinical journal of the American Society of Nephrology : CJASN. 10:390-400. 2015
- Shared decision-making in end-stage renal disease: a protocol for a multi-center study of a communication intervention to improve end-of-life care for dialysis patients.. BMC palliative care. 14:-. 2015
- The elderly patient on dialysis: geriatric considerations.. Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association. 29:990-996. 2014